Dealing with Autism and my miracle of a child.

I have heard some horror stories of parenting a child with Autism.  It got me thinking I do not nearly talk about it as much as I should on my blog.  Here is a a little about our life with it.  I think everyone should know what a little miracle I have.


When my son Timmy was 6mts I kept waking up out of no where and checked on him and he was not breathing.  Obviously it was not a long time because he was normal color and everything and he would start back up breathing.  It went on for a while.  I kept taking him to doctor after doctor and telling them this.  I was a nervous wreck and they acted like I was going nuts.  Finally after months a we got the head doctor that saw me and my sister when we where kids.  He listened to me.  He sent me home with a nurse to set up my sons test to see if he was not breathing.  Sure enough that very night the test went off beeping. That ment that he was going through non breathing moments.  When we saw the doctor again he verified that my son was not breathing and needed the apnea machine more often so I can hear it when he stops breathing.  So we were told our son has breathing apnea.  I thought that was just for people overweight like me and not my baby. Then at 9mts the machine went off and it kept beeping. I jumped out of bed and ran to my son to check if it just came loose.  It wasn't loose.  He was still not breathing. Luckily I took infant cpr before he was born.  It only took one puff to get him breathing again. It did not happen again but it nearly killed me.  He was hospitalized for one night why they tested him.  After that no more apnea.  They found out he was allergic to milk and put him a alternative which I did not like but I did not know much about organics back then so I let them.



My son progressed normally for a boy until almost 2.  He stopped talking and his attention span went to 0.  No toys or anything.  He would not play with them. I bought him a lot thinking I was just not buying him the right toys. At that time I had no idea what Autism was or that it really existed. I went to doctor to doctor and they could not tell me what is wrong. They told me it was not Autism because he can look you in the eye. He only looked at you for a second and wouldn't do it again.  He had the fraying and water obsession, and more.  I heard my nephew in law had Autism so I researched it.  I even had him see a gene specialist to see what was going on.  They did say he had abnormal chromosome that I had but I was not special needs so it wasn't that.   I thought it would be my husband since he is partially learning disabled.  They said no.  Hey these are the top of there field right, They had to be right and me wrong.  Each day I new deep down he had Autism but doubted myself.

They decided at 4 to put him and early child education.  Early Childhood education was another nightmare.  They tested him and said mom really knows her kid because their test said exactly what my forms I filled out said.  They too Just thought he had a learning issue and not Autism.  He loved school at first.  He was excited.  He was saying one word phrases by then.  Then after school started he stopped talking at all.  He came home exhausted and suddenly obsessed with his belly button and parts.  I was told that was normal for boys and it will pass and just not to embarrass him. My thought was really? At 4?  One day my mom came with me to drop my son off at school and he cried and did not want her to leave.  I thought this is normal for kids to not want to go to school.  We left that day and picked him up and he was fine.  The next morning I dropped him off at school and he did the same to me but even more terrified.  He seemed really scared.  I thought once you put them in school they have to stay there. I was stupid.  I said mommy will stay for a minute and get you to calm down.  The teacher said" Actually no.  We need you to leave it is better for him and maybe you should start putting him on the buss.  Oh and I do not think it is a good Idea that grandma brings him anymore because he would not calm down yesterday."  I left but I felt sick.  Something was not right.   All day felt wrong and finally it was time to pick him up from school.  He acted sick.  He was just not himself.  I was scared.  About an hour later I realized he had a fresh wound on his back.   It was like a skid mark at least a 50 cent piece in size.   He was also running a fever. (I forgot to mention I called the school board when I was waiting to pick him up and because I felt something was really bad or off.  They said I do not have to send him to school at 4 because it is only an elective thing at that age.  )  Things started clicking and found out my son was running a fever.  We went to the children's er.  They asked if he hit his head.  I said I do not know and that he got the wound at school.  He asked me to call the school and check.  I called his teacher and asked her about the wound.  She said she had no idea how he got it and nothing happened as far as she knew.  Well I told her we where at the doctor and he wanted to know and her response was "I have so many kids I do not know what happens all the time. "  Ok, That was enough.  She was very angry and hysterical.  She started saying "what are you accusing me of? "  I told her I was not accuse her of anything but Timmy was not returning to her class room.  I had it. I was going to try my hand at homeschooling.   Life continued and after a month of homeschooling he started talking again and more than ever!

A year later.  My son told me one day out of the blue "Mommy, I did not like school."  I said I know baby.  he then said "The kids hurt me." Boom.  Everything made sense.  They did get a new girl student much smaller than my son. I remember meeting her but she was hitting one of the teacher aids.  My son later on when he found more words that a few kids in the class hit him and knocked him down.  I finally thought that was it.  That is why my son hated school.  Really, I still had no idea.

   I cry nightly still over this.What I found out about what happened to him in school and it was not just the kids.  It was a male parent that took him to the bathroom.  It kills me but I don't let him know. 

This is some of my story and now my son is now 12 and obsessed with electronics.  His food and schooling is more important but I know he learns on electronics better so that is why I ask for donations for him for an Ipad.  He was signed up by a family friend for make a wish but they said Autism does not kill him so they could not help us with his dream to go to Disney. . I do not expect one person to donate enough for either so I appreciate every bit.  No one has helped yet and we still could use the help.  We live off my husbands social security because I waited to long to apply when I was injured.  They say my husband makes too much for them to assist us.  really? 1200 for three people?  Our rent takes almost all of it and bills take the rest. :( I do enter quite a bit of contest to earn us what I can not buy.  He needs clothes and stuff and we all only buy second hand to save.  We do without luxuries like cable or anything nice like that.   There is nothing I would not do for my son.

My paralegal mentioned that we would make more money if I divorced my husband and still lived with him.  Or if we where to split and live with someone else.  Sorry I will not do this.  I am honest.  I will not be a person who has kids just for a check.  
Well I bared a lot today.  I just felt the need too. Sorry, Love Jo

Booty Fresh An "Intimate" Odor Neutralizer Review

Disclosure: I got this product as part of an advertorial.

My Thoughts:  I did not get this for me.  I got this product for my son because he has stomach issues so I got him this to refresh.  He tends to have a sour smell when he is having tummy issues.  For this the product was wonderful.  I keep it on hand and give it to him when he goes to the bathroom.  He too does not mind using it and we all benefit from a nice clean smell.  I love natural scents and this is a wonderful mist for any part of the body.  Overall we liked this product a lot and didn't think we could really use it until I thought of this issue. 

Want to Purchase this product click here!

"Product Description  (From product company)

BOOTY FRESH || "PRIVATE" ODOR NEUTRALIZER

WHAT THIS DOES:
Yes, this is a spray for your bum  Simply spray it directly between the buttocks, let it sit, wash it away, and you will be absolutely stink free down there. Doesn't matter how offensive or "permanent" the odor was before; it absolutely works.

THE MOST AMAZING SPRAY FOR YOUR BUM: With a full application of Booty Fresh, you won't notice a scent from offending areas for up to two weeks or longer.

BEYOND HYGENE: Get's Where Soaps, Wipes, and Toilet Paper Can't.  Regular washing can not remove everything permeating the skin.  In fact, toilet paper is a huge cause of a "permanent" odor down there.

DATING | EXOTIC TRIPS | CAMPING: Spray on Booty Fresh for that extra boost of freshness where you’ll need it most. Complete confidence that you are clean and sexy wherever you are!

UNSCENTED & EXTRA SOOTHING: Booty Fresh is made with soothing aloe vera & leaves your bum smelling like...  well...  nothing! That part is for you to decide.

ALL NATURAL & SAFE: Safe to spray in mouth - safe to swallow (yuck! - we DO NOT recommend) – 4oz Spray – Made in the USA – All natural enzyme substrates – 120 Uses

IN OTHER WORDS:
This will give you a totally stink-free-bum (or whatever your word for it is), even if nothing else seems has worked. I don't know how to say it any other way: It Totally Works.
"








I received one or more of the products mentioned above for free using Tomoson.com. Regardless, I only recommend products or services I use personally and believe will be good for my readers.

Castle Rock Resort and Water Park

We are going to Branson Mo.!  We get to stay at the Castle Rock Resort and Water Park in Branson. 

 First Day We didn't get to do the water park because it is closed today (Monday.)  We used this day to just rest in the extra comfy rooms.  We are in the Family Tower Room.  My son is so happy and is watching Sponge Bob on his own TV in the bunk bed room.  We got a double bed and TV.  I have never been to Branson so we decided to go out tonight.  More to come...

Almost bed time now.  We had a blast checking out all the Shows and Food areas in this town.  Timmy said he can not wait for tomorrow because that is when the Water Park opens at 1pm... :) See you Tomorrow!.

Tuesday We went out to breakfast and decided to hit the Water Park.  They have two huge slides.  The one here I been on a few times today already.  It goes so extremely fast you hit the water before you know it. 

 Timmy is of course too big for the kiddie play area but he had to check it out.  It would be a wonderful place for the children..

 There are life guards everywhere here and they are so helpful and nice just like the front desk of the Hotel.  Never been treated so nice at a hotel. 
  

  This slide is a single person with out a raft slide.  This one is not near as fast but just as fun with the swirling action.  I am about to go on it again.  

 Yes, That is me coming out and tipping over.  Can not get enough. 


 Now it is time to go out to dinner.  Can not wait for tomorrow morning.  We get the whole check out day to play in the park too.  I love how close this place is to everything.

Off to bed... See you all tomorrow!

Oh My! This place that I never heard of in the Heart of Branson, MO was just the funnest Vacation this family has ever had.  We do not want to leave and Timmy is planning the next trip back already.  I would love to say  Thank you to the Great people at Castle Rock for letting my family have the best trip ever.  We really needed a vacation and this Resort/ Hotel  is simply the best one I have ever stayed at.  We stayed all day laughing and splashing away.  If you ever plan a trip with your family to the Midwest I recommend this great and cozy Resort!